Pam’s cytoxan journey

September 29, 2010 at 12:24 pm

[QUOTE=Pam H]Iassume you are talking about stem cell transplant, or the high dose cytoxan protocol? I hope Alice will see your post & tell about her experiences with that treatment. I hear there are like 14 people who have undergone that treatment plan successfully & that was a figure I heard awhile ago. I had high dose cytoxan infusions back in 2003 when it was very experimental. After 5 loading doses in 10 days, I continued at my local small hospital to have monthly infusions for 8 more months. Looking back I am amazed that I never got sick, even had a son who works at our local clinic living with us. But I never did get sick at all & never had any vaccinations afterwards either. But remember it was all very new then & it was my last treatment option available. It did arrest my CIDP & allow my nerves to finally begin healing. I would do it all over in a heartbeat, good luck…[/QUOTE]
Hi Pam,
Could you give a little synopsis of your journey with CIDP please? i.e. symptoms, age of onset, treatments tried. That is wonderful that it arrested your CIDP.