Pain waxes and wanes….for me

March 6, 2011 at 9:57 pm

Dear Tom, I have had cidp for 5 years and was dx with RA six months ago. I receive 90g of IVIG every 5th week, take 120 mg of Cymbalta for the nerve pain. The Cymbalta has increased from 60 to 90 mg in three years and most recently I have bumped it up to 120 mg. The neros aren’t sure why IVIg works for CIDP, but it does so I recommend that you speak to your doc about it.

Because I have been on IVIg therapy for five years, my pain comes and goes. It has increased over the years. After a day of teaching the pain is pretty much intolerable. I get up in the am take my meds and go at it again. I work in constant,horrid pain everyday. Some days are worse than others. Weather does affect me. I live in Idaho and it is cold and snowy here. I know that impacts me. If I have just had my infusions, I usually get through the days of teaching a little easier, but not always.

I guess what I’m trying to say is that there is no pattern for me. Good luck with your ” out of the box ” experiment. We all deserve hope.

I’m headed to Northwestern University in Chicago for my SCT evaluation. Hopefully I will be accepted into their program.

Good luck to you. Hope this helps.