hello, first thing….. if i could be there by your side and just hold your hand and comfort you. I would. I’m so sorry that you are having such a hard time. I was relieved to hear that you have a strong spirit. I also was diagnosed in 2008. I still have much fatigue. my muscles still hurt. (not as bad as yours) and I have very bad flare ups off and on from pain. my question to you; have you heard about cymbalta? Ask your Dr. about it. over here in canada, dr.s use cymbalta for chronic pain. of course every person is differen and works differently for different people.
I love the hottub. works wonders for me. but l must be careful. to move around in water feels very good. wh.en I am in pain.
your in my prayers. Take good care always.

Flower, last year the New England Journal of Medicine published a paper on this very subject, pain control in CIDP. The conclusions were precisely as you have outlined, neurontin to maximum dose plus a tricyclic antidepressant at bed time (this raises the threshold of awareness to pain) leading to a combination of neurontin plus opiate.
Your pain zaps your strength so it must be relieved, if opiates are necessary so be it. I understand tht opiates taken for reasons of pain relief are less psychologically addictive than when taken for psycho-social reasons. Docdavid

First off, I do not take pain meds because of problems with regressive apnea. And I’m weaning off Cymbalta now, but I applaud anyone who can take a day off from pain and I’m rethinking how I could possibly do this. Massage, reiki and acupuncture have worked for me…maybe I’ll do a day where I get all 3 repetitively….Yumm:)