I have been having alot of pain in my feet and hands as well. My doctor upped my IVIG, but I still have pain. I have tried antidepressants and the only one so far that helped was the Cymbalta, unfortunately I could not take the side effects. My internist gave me Ultram for the pain, but that seems to not be working like it did, it only took the edge off of the pain. I have tried to google reasons for such pain and have had no luck. My Neuro is baffled also. My question is, could there be a different type of doctor to see for this? I do have mild osteoarthritis in my hands, but it would not cause this much pain and there is also pain in my feet. It seems to get worse near the later afternoon and night. Hope you can find an answer to your pain, I know how frustrating it is to have it and not be able to control it.
Clare in Michigan

My Fiance’s primary care physican told us that sensory nerves aren’t damaged in GBS. Whatever!! :rolleyes: It seemed those were the first affected.
The best source of info I have found is the book sent by the foundation. Even the Nurses in the hospital were borrowing it to read up on. Plus just google-ing the terms Guillian Barre with words like pain, numbness etc brings back alot of information as well.
The number one thing is to not let people generalize your condition like that. As anyone here can tell you every single person is different with GBS. The signs, symptoms, treatments and recovery will vary from person to person.