when I’m in pain… I’m fidgety. I move around quite a bit. stand, sit. I use a hot tub. I also have heated seats in my car. The best was massage therapy. It hurts in the beginning, but it helped my pain and helped me to walk.
Hope this helps.
Take good care always.
i deal with a high level of pain everyday, mostly in my feet and legs. i usually describe the pain as, “well, i would prefer to take a chainsaw and just whack them off”. knowing that would be too messy i did goto a pain clinic. my mom had been going to the same clinic for some time, as she has had multiple back surgeries and now rods in her back. the clinic seems to be great for my mom with a back problem, but i didn’t feel comfortable there at all.
where i live the clinics are able to make up rules that are above and beyond state laws and they strictly abide by them. i understand there is a large population of drug seekers, well according to the pain clinic.
i had to sign away so many of my rights just to be a patient there. the doctor didn’t know what CIDP is and when he seen a positive THC in my urine he really showed his true colors. i was not even allowed to explain my stance. i was wrote off as another “junkie” in his book. he then told me, “well all i can do for you is start you on methadone once you have a clean urine”.
the contract that they wanted me to comply with was to goto their office once a month for a visit and the refill of whatever narcotic they have you on. you are subject to pill counts and urine screens based on rolling a set of dice.
i seriously write off that whole exploration to modern day REEFER MADNESS!
You might discuss with your doctor the possibility of trying Amitriptyline. It’s an antidepressant, but also works on nerve pain. It can take a couple of weeks to start working, but the only side effect I’ve experienced is some weight gain. It also helps me sleep better. I have been taking 75 mg at night, but just recently reduced that down to 50 mg.
I agree there is some trial & error involved. Lyrica & Neurontin didn’t work so well for me.
Debbie in Miami
Was it your Neuroligist that took you off the Neurontin and changed it to your new medications or another doctor? How much Neurontin were you taking each day? Regardless of the answers to these questions, it sounds like you need to call your Neuroligist ASAP. Take care. John