Pain And Fatigue

June 7, 2006 at 7:52 pm

Hello Laura,
GBS and CIDP are syndromes where you feel better very slowly. My opinion is that you need to give yourself two years before you start getting used to this and feeling better. During the first year, you DO need naps, so rest when you need to. Exercise is important because our muscles are not damaged and we don’t want to lose them, but unless treatments are successful in controlling the syndrome, you’ll be doing no more then just keeping yourself limber.

Don’t try to push yourself about going back to work, instead find out if you can do part-time. If you have not done so, try to apply for disability, many here have had to do so.

Here’s a group hug for you.