I am so delighted that there is such support for the Outcome Study. The survey was mailed to the approximately 650 patients who have identified themselves to us as having CIDP. If you have CIDP and have not received a mailing by the end of this week (5/18), please call the office and ask that one be sent to you. We will keep your name confidential. The reason why it went only to CIDP patients is because there is a larger use of IVIG among this group of people. We will make results known to those on our mailing list but it will be some time before we get the surveys analyzed.
GBS/CIDP Foundation International