June 20, 2006 at 10:25 pm

This is a p.s. to my previous post, and another question.
(Those links were terrific.):D


I get headaches from resting my head on ANYTHING. whether it is my pillow or against the back of any chair. I wake up at from 2am to 5am. It is burning pulsing pain on the back of my head. The longer I wait the worse it gets. So I can reduce the pain by sitting in a chair for the rest of the night. I wish I could really rest. Without fear of that pain. I think it is worst when it’s going to rain in a couple of days. In a while it ingulfs my whole head and can last all day or more. Or if I wake without headache, I will have it again by 1 or 2 pm.

I told this to my GP, my internist, 2 neurologists, 2 physiatrists, a couple of PTs, (all these over several years and moves) Every one of these doctors just sits and stares at me and does not say a thing, or even write anything. They stare long. They order CTs and MRIs. All normal of course.

Anyone ever heard of this? None of my docs apparently have.


Oh, if I could figure this out I could even sleep without a pill for sleep and pain.


June 20, 2006 at 6:11 pm

Thanks so much, all of you who answered. And kenspdn, I like that long discussion of “my” disease. Every one of you told me things I need to know.

When I think back, I had cramped chest and back muscles that felt like “I was run over by a truck” (as discribes some heart attacks.) All along the way for years and years my doctor would do tests and tests and they were always normal. Nothing wrong with me. I described it saying I felt like I had a basketball inside my chest.

This happened when I was working the hospital lab, in the old days when we mouth pipetted (with no safety-blocking cotton) chemical reagents and even patient fluids. I never did get blood or urine specimens in my mouth but some of my lab friends did. Before that job, when I was in school, my lab partner had a rack full of tubes containing live botulism, tetanus, plague, etc. She dropped it and all those specimens splashed on my clothes. I tell you so you can imagine what lab classes and hospital workers put up with.

And that is also when my sensory system began to be fouled up and continuing . . . My friendly supervisor assured me it was only leprosy. (That is what leprosy might start out with.)

All of your comments help me to realize that I’m not malingering (believe me, that hurts). Got that from family, had the feeling it was doctors thoughts too.

That stomach stuff, speedy heart beets, sweating spells, blood pressure, are REAL. And I’m not neurotic, just sick. It kind of gets me off the hook. This is a really fine school.
Be well.