Hi all. Christine here. I am 4 months into dx. GBS/CIDP? and have just started 500mg oral prednisone weekly…80mg daily. We tried monthly IV steroids of 1000mg, tapering down each month…5 days – 3 days, next month – 2 days last month. So far am feeling some benefits from oral steroids, e.g. increased energy levels to get me through each day is a good result. I am wondering how many of you are on oral prednisone and what is the lowest dose you are managing on?
🙂 Am LOVING this forum…such a wonderful support – thank you.