One Other Thing…
Just a note–
Ryan will have good months and bad months–you just never know.
Good months-with little nausea, Bad months-with lots of nausea.
And what bothered me most, was losing my hair. I lost about 3/4 of it.
Many people lose all of it.
So, to prepare hime for that, what seems to help, is to get
a really short haircut. That’s what Alice did, before she lost all her
hair after getting the Cytoxan.
one other thing…
I have a friend who had gbs as a young man, in the early 80s. He was very severely affected, completely paralysed, on a vent, sedated, plasmapheris, etc–in hospital for a year (including rehab unit). I say this not to scare you, hopefully your son will get better sooner. The reason I mention my friend is that he is 100% recovered, has a wife, family, is a business owner, physically active. In fact, I never knew he had gbs until my daughter got it. It took him a couple years, but he says after that, he’s been fine. When you get scared, it sometimes helps to look at the success stories.
One other thing….
Just wanted to let you know that since last year and being on Cymbalta, I have lost more sensation in my hands, all fingertips have that novacaine, tingly feeling that started the GBS and also now my feet and left calf are doing it too…..I thought Cymbalta was doing it. But it actually is worse this past week, with coming down from 60 to 30mg of Cymbalta. N