on a mission?

May 6, 2011 at 8:34 pm

I know that part of me is simply on a mission or journey. I know that most of the time CIDP along with other rare conditions are hard to dx, and therefore, it is understandable when a dx is not made in a timely matter. But there are other times when the dx is staring a doctor in the face. In my case, I actually pleaded with my Neuro to do specific tests- but she convinced me that what I had (she had me misdiagnosed) would go away but it was gonna take time. As my symptoms progressed and I could no longer walk normally- she continued to refuse…..I am mostly concerned about the number of sufferers that are out there who are ignored by the professsionals. I was eventually labled as having a pschosomatic illness. I am haunted by the fact that I would be able to walk normally had she just listened and kept her rude, and snide remarks to herself. Should I make a stand for all of us, or walk away. Everyday I seem to wake up with a different answer.