I just asked my Neuro at my last appointment about this “mouth” thing. I told him that ocassionally whenever I go to talk- It’s as if I get tougue tied and sort of slur a word. Sometimes it feels as though my tongue is rolling over. The words just won’t come out quickly and normally. I actually wonder if the person I’m talking to notices it. I slow down my speech hoping this helps. My Neuro said, “just don’t worry about it”. I also get a tingling deep inside of my ears at times and whenever I move my eyes to quickly – up and down, I get dizzy and I feel like I’m going to pass out. Doctor said the eye thing is from the sensory part of my CIDP but the itchy, tingly, ear thing is not related. I think it may be as often times when I get it, my face starts with the tingling too.
Hello Alice, I am new in here so please bear w/ me/ I thougt i was the only one with the SAME problem. i am approaching my 4 yr anniv. i have gbs I asked my dr. she said try some type of lubrecant. did nothing. i agree that are special nerve ending are messed up big time. Margaret
As I was reading your post, I was trembling, thinking that you REALLY DID lose your daughters and grandchildren……………………I was sooooooooooo glad and relieved to see you post that they were ok. I know you and your husband were “beside yourself” worrying about them!@!!!!!
I will PM you in a second.
God was surely with them,