Oh my…

March 31, 2009 at 8:59 pm

And here I’ve always blamed it on the meds and/or the ‘condition’!

If I don’t get my mid-day nap? I’m not a happy person. NOT!

OH my?

November 18, 2007 at 5:31 pm

Dino, in ever so many ways you have been very lucky to have gotten treatment from the onset! Truly, I mean that.
Since you are getting PT 2 times weekly, have the therapists given you any exercises you can do at home? I’d learned to ask my Docs for that, as I find IF I can keep doing some of the simpler exercises with either therabands, therapy hand ball, marbles[for the feet/toes] and balance discs…that I can do more in smaller sets of reps [say, not 3 sets of 20 reps, rather 5 sets of 6 reps-I think that’s how it is put] and that I can more easily do the smaller sets and add on almost daily building up strength without tiring. If the therapists won’t do it without a doctor’s orders, ask your doc for such an order. The more you can do at home to build your strength, the better. Chip Clips are good for finger strength exercises as well.
No matter if it is GBS or CIDP, it’s a long slow and painful recovery, or even maintaining a simple status-quo [not getting worse].
Hang on and keep faith, at times it is all we have. Fight it’s affects on you with your attitude [gonna beat this!] and outlook [gonna improve!]. Either way, this isn’t fun? But giving it all a solid fight can bring benefits… Good thoughts your way.