Oh dear!

November 27, 2008 at 2:16 pm

Three years ago I’d a headache of the kind you describe due to a] a likely bad batch of IVIG [long boring story] and b] a reaction to the ‘changed’ brand administered. I don’t usually get headaches except on rare IVIG occasions or reactions to meds these days. It was miserable trying to ‘do’ a dinner with such a headache! Let your Andy learn how to ‘do’ a dinner and also if others are coming? Have them bring sides and other goodies. Know your limits and right now you’ve been blindsided!
Look up the brand of IVIG you are prescribed [web up ‘brand’ ‘prescribing information’] and get to the side effects parts…you will find that what you are feeling isn’t uncommon? Just that the extent of it is abnormal. Further complicated by the intro of the Rituximab. [Do the same about that for prescribing info]. If it’s your first time for IVIG? I am soo surprised that they hit you with two firsts at one time. I’d have thought they would sort of do a try one…see if it works, then another?
Honestly, If I were gonna barf when I’d already told them I was prone to barfing? I’d aim for their shoes! Somehow that sort of thing seems to get the true points across much better than any statements.
Because you are on the Rituximab, you’re more likely to get some of the better anti-nausea meds for that sort of thing than if it were just the IVIG. Sad but true fact, this is life?
I hope you make it thru this ‘holiday’ somehow and when done? Give Andy a hug! Maybe tomorrow? You mite be able to enjoy some of the leftovers. With time.
Kevie is the Strongest one here for sure! He just goes along with the plan but is able to speak up when he knows something’s not right! As much as goes on with us? We really have to keep that child-like outlook [no matter how cynical we get] that Kevie and the other beautiful children here have! I don’t know about you, but their courages give me a lot of strength when I am down! Doesn’t make your head hurt less, but it can give you some extra strength from within that you didn’t think you had?

Oh dear!

November 26, 2008 at 6:34 am

Oh dear Micheline! I am so so sorry to hear your news. I will keep you in my prayers and do hope that their is some kind of new treatments that will help you get through this. But my deepest prayers will go out to you and pleased keep us posted on how you are doing. You are family here and we all care! Sending you some Cyber Flowers and several Hugs.
Linda H

Oh Dear!

July 3, 2006 at 2:56 pm

I know I have put myself in charge of snacks for the bar, but this visit to the men’s room would give more meaning to “Peanuts”.

OK new rule! No drinks or snacks in the Restrooms! I will only be leaving them at the bar.

Tons of stuff under the bar! The grill is hot and so is the weather! Cheese Burgers and Fries for everyone! Happy Fourth of July! Pass the Potatoe Chips! On the menu for Tuesday is a Huge FISH SANDWICH for those that are going swimming a free raft is encluded! Sun screen too! 😎