numbness
mine has never gone away. its in my legs and some parts of lower back. said it was neropathy man it hurts to point of getting sick some times. so i understand its real aggervating when you cant play with kids like use to.sorry if i seem harsh or selfish .im just not use to having folks who understand to talk to im loner and hermit. wife an 2 teens an10yr old so i just kinda pulled away from peps. due to talking behind back an staring at me when walk.
Numbness?
I originally had numbness but since my first ivig treatment (fixed the conduction block that was causing my foot drop…wooohoo!) back in November, I’ve had no numbness at all but I keep getting weaker and weaker with fascilations everywhere possible and steadily losing muscle mass as well.
Does the lack of numbness for two months still consistent with Lewis-Sumner or CIDP for that matter?
When I was discharged from the hospital after my last ivig session on Dec 19, the neuro said my regular neuro’s office would be contacting me for a follow-up appt but they’ve yet to call. :confused:
numbness
I experience the same thing. I just recovered form GBS only a few months ago. But made almost a complete recovery. I have noticed that I’ve been waking up in the night a lot with numb extremities. I also notice that it hurts more than usual when it’s comming to. It hurts to the point that I can’t move it or touch it until it’s completly “awake” or else I am in EXTREME pain. So is there any one here that is on medication for this?! And if so does it really help?!
<333 Angee
Any advice or help would be greatly appreciated.
Numbness
Norb,
I would have to say I was in the PROGRESSIVE pattern of cidp because I never really went through FEEL BETTER/FEEL WORSE…..FEEL BETTER/FEEL WORSE. Except for the progressive years, I basically always felt the same and I went through about 1yr.+ feeling like nothing but water was being dripped into me, because I had stopped progressing
Numbness
I am one of the few, or maybe the only one, who never had “PAIN, pain”, so I was never prescribed any. My neurologist told me that neurontin would not relieve numbness, so he never recommended it.
numbness
Hi,
Have you tried Neurotin. Maybe some of your numbness is actually pain if it is that bothersome to you.
Pam K.