notes

Hutsky, it is great to see you on line. Don’t be shy; join us again. Also don’t throw away your notes. Every person hears through filters and understands through filters based on past experiences and current concerns. I am a great believer in use of the internet to help to educate and provide accurate information about medical problems–especially the rare ones for which little is known. I will try my best to add summaries of talks as possible with the hope that those that miss it or are not diagnosed yet or are far away learn more from the wonderful professionals that talk at our meetings. These are rare conditions and there is not a lot of summary information out there and I really, really hope that more information is made available through this site.
WithHope