Visual disturbances are very common among everybody with GBS/CIDP, or MS. From a little blurry to very blurry, double, triple, quadruple vision. Ocean wave like vision, seeing all kinds of spots. Stars, big bright beautiful spots even episodes of blindness. Glad your glasses help.
smitty

Praise the Lord! That’s wonderful! You’re healing! Thanks for sharing & keep us posted. I will continue praying for you.

smitty

Glad you enjoyed your trip, & family!

Congrats on the energetic new you! Surely you are recovering! Maybe your recent adventure with your family brought it on.

smitty

You’re not dumping, you’re sharing. We all care enough to give advice. Go have fun & medicate. Traveling is horribly painful to me, I mostly avoid it, but there are some things I just won’t miss.

Love, smitty

Can’t wait to hear that song! Love, smitty

Oh yes you are a somebody, a very important somebody, who cares a lot about lots of stuff!!!

Love, smitty

I hear that you are supposed to taper off, however I had to go cold turkey due to trouble with the order. It was bad, couldn’t sleep, violent restless legs, increased pain. It happened more than once. Read other posts about going cold turkey.

I hear you. About people asking “you are better, right?” And ” you look so good”. We all get sick of people asking about your illness, & trying to explain it. The only people who understand it are people who have it themselves, or their families have it. Our fairweather friends will soon be gone.

I have hit people with my cane, & I see my shrink every month. The people I have hit were church people who keep wanting to touch me, when I have told them many times “please don’t touch me I hurt & can’t stand to be touched”. Some one described it as “I feel like my skin has all been sanded off & anything touching me feels like broken shards of glass.”

People at my church, who have known me for many years, & have seen me slowly go downhill, are the ones who make those stupid comments. Now I’m in a wheelchair, & have been asked many times “are you up walking around”?

Love, smitty

Sorry your fingers & hand froze up, I know the feeling.
smitty

Good for you eating healthy! The weight gain usually only affects women.
smitty