Everything is still going fine, having IVIG now 3 months apart. I can now walk up to 2 miles, we have been going out walking on hiking trails all summer. I still do not have complete control over my ankles and feet, they still tingle but everything else is near normal. In my case, the solution that got me to this point is to do intensive physio starting from the time I could not even stand on my legs. My neurologist sais that my case has been the worst he has seen and has had the best recovery.
I am writing this update so that all of you must not give up, if you work extremely hard and keep a positive outlook, things can and will improve, I am a living example of that. It has taken me over 3 years and I am still improving.