No Reflexes

May 29, 2009 at 11:30 am

Hi Everyone,
I started having numbness in my feet 9 years ago. It is now in my legs and hands. My coordination is like a toddler trying to walk. I have no reflexes in my legs from the knees down. The right leg is much worse. I have not been able to bend my toes for 6 years. I was first diagnosed with MS. Was treated for that for 3 years before going out of state for a second opinion. CIDP is not commomn so it is often misdiagnosed. I was told by one Doctor that it was all in my head. The best way to deal with CIDP is to take it 1 day at a time. I am now begining to have incontinence problems because of my loss of muscle control is getting gets worse. Have done IVIG for 4 years and it is no longer working. DR told me my next course of treatment will be Chemo. My condition gets worse every year and I walk with a forearm crutch. I will probably be in a wheelchair in 2 to 3 years but I am not going to give in. TOOOO much to live for.