No one can understand…

Norb is right, no one can understand our losses & how sick & weak we feel so much of the time without going through it themselves. I have a daughter your age, so my heart breaks for you. I got sick at age 48, six years ago, & that was bad enough. I don’t know how my husband & I got through those first 3 terrible years, especially when he was still having to work full-time, take care of me, & do everything I had previously done. But we did make it, & now I can actually help out quite a bit. I do walk with AFOs & can’t carry anything (terrible balance), but I can cook again, do the dishes, take care of all of the bills, take care of myself, got my driver’s license back, etc.

You need someone to vent to, but he cannot understand. I try not to talk about my pain too much or mourn my losses to my husband. That is what this forum is for. I do let him know when I am fatigued, however, as it is pretty hard to hide. But talk & always find ways to keep your love alive…
Pam