No demyelination on electro-studies?

September 22, 2010 at 12:05 pm

I have had too many EMG/NCV tests to count.

Cleveland Clinic Ohio and North Western University Chicago stated quite clearly “…no evidence on EMG/NCV of demyelination…”

However, a specialized muscle biopsy at Rochester Mayo clinic did show clear evidence of demyelination.

2 of 3 diagnosed a variant of CIDP over multifocal motor neuropathy (MMN). However, I don’t think that is too important. IVIG has been used to treat MMN (motor axon damage.) Enter this search criteria in your browser “nih ivig for MMN”

Try to go to one of the 7 centers of Excellence recommended by the foundation. If you are unable to do that try to find a neuromuscular specialist. General trade neurologists generally (pun intended) don’t cut the mustard for these specialized conditions.

good Luck