New to the Forum

Hi Everyone….I am new to this forum, and have been diagnosed with CIDP in April 2010. I have had two IVIG treatments, the first one helped a little, the violent tremors in my hands subsided, temporarily. My second treatment produced no improvement at all. I developed foot drop at the onset, and now have to wear a brace. My neurologist feels that physical therapy is my only alternate treatment until my nerves and muscles start responding, and perhaps then the IVIG will have a better outcome. I have recently relapsed, and now I feel that I have no options but to live like this. I have a great pain Mgmt. dr. who is helping me with the pain, which is so severe, I feel like it would be a blessing if I just wouldn’t wake up. At times I am so frightened, I cannot believe that this has happened to me….how did it happen? Again, like the rest of you, no answers. I am so relieved to have found all of you, trying to explain symptoms to someone that doessnt have the disease is difficult. I hope my neurologist will suggest another treatment plan, so many of you did not respond to the IVIG, and you were able to find alternate treatments. I need advise, and information, if you can help. So nice to have met all of you, and hopefully I can stop spending 18 hours in bed, and start enjoying my life a little. I’m not asking for a lot, just a little better quality of life than I have. I would LOVE to take my dogs on a walk again! That is my long term goal, and I try to exercise, but am so weak it is difficult. Do any of you have such extreme muscle loss? Have you been able to rebuild your muscles?
Thanks for listening!
Carol