New neuro?

December 4, 2007 at 11:53 pm

I went back & read most of your posts. First off I am concerned about the high dose of steroids that you are on, 80 mg per day? I’ve never heard of that large of a dose. It will wreak havock with your entire body. Did your neuro at least start you off with a 5 day loading dose of IVIG & wait to see what happened before putting you on so many meds? Why the Cell-cept so soon?
In the almost 6 years I have had CIDP & been on this forum, I know only a few people who have been on this drug. Once dx did he start you on all of these at once? If so, how can one even tell which drug is working for you? I think you should find a new neuro who gives just IVIG a good chance to work, & also he should not be telling you at this point that your nerve destruction is permanent, it is way too early. I got most of what I got back starting 1 1/2 years after I initially was hit so hard by CIDP that I was in a power chair with no hand usage for that length of time…