Aimee is totally correct. Once my CIDP was arrested, the only way I could tell my nerves were healing was when my arms & legs became stronger (it took months.) I also had more feeling everywhere on my body, except for much below the knees & almost none in my feet. Since your CIDP is strictly sensory, you will know if you regain more feeling. I haven’t had another EMG since I was first hospitalized in Mayo for 3 months in 2002; my feeling is that I know what I have & when I began to improve…
Pam

I think we have all heard a lot about the “two year window of healing” from our neuros. What I now think they mean by that, is that the majority of the nerve regeneration does come after the first two years, once the illness has been arrested. I never believed my neuro before either, but now when I think back on it to when my CIDP was arrested (after 8 months of still getting worse,) I realize that, for the most part, he was right. I have seen small improvements since then, but the majority of the improvements came within the first two years. I have been at almost a standstill since I passed that date.

I think the improvements we see after that time involve more of people finding ways to do things in a new way. BTW I still type with two fingers, as I am actually correcting much less than if I try to type the way I used to. I wish I could offer more hope, but nerves seem to heal the way the neuros decribed to me…