Reply To: Newly Diagnosed

September 1, 2011 at 7:45 pm

I’m sorry you’re having such a hard time. Your symptoms are similar to mine as well as the labs…most all mine was normal except elevated sed rate, CK and flucuating CRP. I also flunked the ncv/emg. i saw a neuro 4.5 years ago and at that time i had no reflexes, he told i had either chronic fatigue or fibromylagia and sent me home. your situation has progressed a lot faster than mine but post ncv i really went down hill. had the test on a friday, could not get out of bed sat or sun. dr. said he’s never heard of anyone having after effects from the ncv… i hope you’ll be able to get back home quickly but i’m glad you’re getting looked after round the clock.

hang in there…you’ve found an amazing group of people here. i only joined recently and have found so much support here, it’s been amazing.
keep us all posted on your progress.