Reply To: GBS now CIDP
Then I think it’s time to find a new dr.
What is the point in having the surgery if the attack is just going to happen again?
You need an immuno modulator to help control the bad anti-bodies. Once they are controlled then your myelin & nerves can begin to heal. That’s when you need to have the surgery. To have the surgery & no treatment it’s just absurd to me. The dr needs to treat the disease NOT the symptoms!
I’m sorry but dr’s frustrate me sometimes.
Call the foundation & see if they can give you the names of any dr’s in your area who know about CIDP.