Reply To: Help Please!!!!!

Hi Jodylynn,
Sorry things are so messed up. Has Dr. Parry abandonned gbs/cidp? Have you tried begging his office and explaining your predicament and deterioration? Maybe if you write him a letter and fax it to him he would make an acception, or try calling the foundation and see if you could get them to pull some strings. What about lying and saying maybe you have ms? Has it been r/o? Hope you get some help soon, i am praying for you. BTW, if worse comes to worse, you may have to go to MAyo. I am sure the docs are different, and maybe you could bet in contact w/ the hospital administrator and have a heart to heart explaining your urgent health situation and your past experience with the institution. If he knows of your past and present plight, maybe he could make sure things run smooth. Just a thought, maybe I am holding too much faith in the human race.
Dawn Kevies mom