Reply To: 7 year old female with CIDP
Thank you so much for replying so quickly I really appreciate that. She received the first IVIG (12 grams per day for 5 days) and recovered quickly, 4 weeks later the symptoms returned and she received another 5 day course of IVIG, that time she didn’t recover as quickly. 4 weeks later the symptoms returned again and she received 3 doses of IVIG and her weakness continued to progress and at that point she started plasma exchange. Is cell cept and plasma exchange the same? So correct me if I’m wrong but for your son you use IVIG on a monthly basis before any weakness reoccurs and this has kept him healthy for the most part. So does he still have any signs of the CIDP? Also I would be very interested in having you send me the abstracts info. If you could email me at [email]firstname.lastname@example.org[/email] then I would be glad to give you my address. Thank you so much! It’s so nice to just not feel so alone in making these huge decisions about my daughter.