Reply To: New Member

Micheline:

You and Tobias are in the worst part of this whole GBS thing. You are in a state of limbo or purgatory where everything is suspended because of illness and you are unable to make plans. This is truly the worst of times. But when you are at the bottom, there is only one way to go from there. You will either get better, and most everybody with GBS does get better, or you will learn to live with the situation. Either way, things get better for you.

There are quite a few positive things that you and Tobias mentioned, and that makes me think you have an excellent chance of getting better. You are able to support your own weight. If you can do that, you can use your own body weight to exercise your leg and hip muscles. Some people go a year or two before they reach the point where you are at.

The fact that your doctors have come to some conclusions about your condition makes it so they have a sure course of action for treatment. CIDP is not a very easy thing to diagnose. The GBS/CIDP Foundation still hasn’t developed diagnosis criteria, but they expect to have the work done sometime this year.

I know things look bleak right now, but things can start improving faster than you thought possible.

You and Tobias will be in our hearts and prayers,

Lee