Reply To: New member

Hi Michael,
Welcome to the forum. I’m sorry for what you have been through. My husband has CIDP-MADSAM and he was diagnosed in 2007. He has had monthly treatment with IVIG since diagnosis (actually started on q 3 week treatment about 7 or 8 months ago). He has had all sorts of different brands as he generally would just take what the blood bank sent up to medical day care. He didn’t seem to notice any difference. Over the last couple of months, they started sending up Privigen. He has asked his doctor to order that one specificially as they can safely run it through faster than other brands. He has had good response to all brands. No headaches at all if he knocks back lots of water starting 2 or 3 days before treatment and during treatment. IVIG is my husband’s only treatment as he leans toward high blood sugar and has beginning cataracts so he isn’t a good candidate for steroids, and he had a bad reaction to Imuran when they tried that a couple of years ago. According to research literature Gammunex is the only IVIG that has had drug trials for people with CIDP, and the trials all showed that Gammunex worked. Hubby did fine on Gammunex too.
Laurel