Reply To: Prednisone

Some people with CIDP, especially children, cannot take Prednisone as it makes them weaker. We went through this with Emily when a neuro put her on it. She went from her eye relapsing every 12 days to every 9 when she was on the highest dose.

I say that you should start to taper down with the help of your dr. You cannot just stop taking it unfortunetly. Prednisone is one of those weird drugs that significantly helps some people & makes others much worse. If your neuro is really pushing for steroids you could attempt to take Solumedrol later on. It’s an infused steroid and doesn’t cause as many side effects. It MIGHT work better for you.

I hope you feel better soon.
Kelly