Reply To: New Member
Bluebonnet, Welcome to the Family. Sorry you are having soo many problems. It sounds like you might need to get more rest, in a lying position. I know how you are feeling, relapsing like you are could be 2 different things. 1 being relapsing/remitting gbs and the other would be relapsing/remitting cidp. steroids isn’t recommended for gbs, was the results after your first ivig/steroids different then with out steroids ivig? which one was a better result? steroids are used in cidp cases sometimes with good results. if you have not recovered to a high degree in between the relapses, you more then likely have cidp. It can take alot of trial and error to get it in remission with ivig, steroids and or other meds. Have you tried pp? if ivig didn’t work well for you then you might try pp, if pp doesn’t work well alone, then use ivig afterwards. Sometimes the combination of the 2 works well. its different for everyone. Stay positive, it may take time to recover but be assured you will. Feel free to ask as many questions as you have, or just vent, we understand how you are feeling.