Reply To: Neurontin

July 10, 2007 at 1:44 am

Gene and Jerimy: Thanks so much. I will take this info with me when I visit my daughter this weekend. So far, I’ve met 2 drs at the rehab hospital. Adequate, I’m sure, but not inspiring…and gave me nothing during our conversations to indicate any particular expertise or interest in a GBS patient.

Everyone: I’d like to share that my daughter is making progress. 🙂 And for about 5 weeks now, there has been no regression…bad days, but no regression. YEAH! She is beginning to eat real food, albeit soft or pureed, and has tube feeding for back up nutrition. She has begun breathing on her own for an hour or two, once or twice a day as tolerated. Has regained some hand strength; though not dexterity. And has some movement in her hips, thighs, and feet. As you may recall, she was dx 5-11-07, had 11 PE treatments, continued a downward trend until week of 6-14-07. She has an extremely aggressive case, sourced to the cytomegalovirus (sp)–those cases are cited as being tough all around.

Thanks to each of you for your support, encouragement, and prayers. Know that mine go out to you as well.