Reply To: Questions

Gabriel100,

How far apart are your plasma exchanges? Are you doing anything else, steroids or immunosuppressants, as treatment? In many people, plasma exchange needs to be done frequently (every other week or so) to be effective and to level out the highs and lows.

Your relationship with your neurologist seems to be strained. While your diagnosis is likely sound, asking for a referral for a second opinion is still worthwhile and may be a way to find a neurologist more suited to you. If not, you need to discuss your relationship with your neurologist. It will be undoubtedly awkward, but you must get answers to your questions. You are the one responsible for your health, not your doctor. If your health care system has an ombudsman, ask for his/her help.

Godspeed in finding a truly helpful treatment,
MarkEns