Reply To: Newly Diagnosed

February 27, 2007 at 9:06 pm

[QUOTE=mom23boys] then wants to treat with high dose steroids. Does this sound appropriate? How long is thy typical course of steroids? What questions should I be asking? [/QUOTE]

Hi, make sure you discuss the possible side effects of steroids with your doctor and perhaps do your own research.

There is a number of us taking steroids. I for one tried high dose Prednisone a year ago and had to quit because I was losing control over my legs and needed to get a walker because of it. I also got terrible shooting pains all the way to my neck. Different people react differently and mine probably was not typical.

I am on IVIG which does help some.