Reply To: new member/cidp

June 22, 2006 at 8:02 am


I am fond of saying I wouldnt wish this on my worst enemy. I am sad to say your not alone. There are good days though. I found IVIG to wear the living heck out of me and honestly dont know if it helps. It was worth a try however. Yeah your sorta stuck to that machine, I had mine done at home however after the first year a nurse came to my house which was so much nicerthan a hospital stay or day visit there.. I could use the walking pole to use the bathroom and watch my own tv somehow it seemed less invasive? fool myself? maybe but it was nice.. You might ask. I am always wiped out for a good five days after treatment. I think that is not abnormal. Its a tough thing for the body to handle. I did notice however it worked better than PP treatments for me and better than nothing at all. Patience, with yourself mostly, is a key. Go slow. Treat life like there is only one speed and speed isnt the word. There are a couple good docs who are members here. listen to them. Doc David comes to mind. They are excellent resources of info. My grandmother always says the first 100 years are the hardest. she is 91. I think heck she probably isnt half wrong.