Reply To: Relapse????

KL,
To put yourself at ease as far as a relapse or possibly CIDP, have an EMG/NCV. This will determine nerve demyelination.

Like you, I had GBS many years ago, 26 in fact, and I have had no problems with residuals, that I thought about at least, until last year. My problems started in my arms and then moved to my feet and legs. Lots of pain, cramps, and then the pins and needles tingling.

I took Cymbalta, with good results for about 10 months, but it “helped” me regain the 60 lbs. I had lost the year prior. I asked to be taken off. Pain is back and the tingling never left.

I sleep SOOOOO much more now than I did before. 10-12 hours a night with a nap in the day. And I am still tired. I do notice that in the beginning of the day, pain is less and so is tingling. More I do, more pain, more tingling.

I have a script for Neurontin and I keep telling myself that it will get better if I rest more and then I won’t need it. I’m like Ali, hate meds….

But like gene says, get more rest and see how you feel. I bet it will make a difference.

Good Luck and remember we are here to support you and hold you UP!