Reply To: Just diagnosed?

Anonymous
October 15, 2006 at 9:05 pm

[QUOTE=Jim Yarno]JSeattle The onset of GBS can be extremely frightening. I was diagnosed with Miller Fisher Syndrome in 2002 and can tell you I was afraid. I am 62 years old and live in Seattle. If I can help in any way please let me know.[/QUOTE]

Jim – since there are not that many Miller Fisher patients – how are you doing now – from my reading the info. they say 97% of the people recover 100% within 6 months – I am now going on 8 months and feel the same I did at the end of 4 months – mainly fatique and numb face, mouth, teeth and tongue with a burning sensation. I am 59 yrs and have no idea how I got it.
Sore upper arms and back at night when I get tired.
Thanks,
Sally