Reply To: Multiple Sclerosis, better yet GBS

June 8, 2006 at 11:32 pm

Dear Anita:

If you think that the GBS is still active then you should be getting treatment for it. The treatments are Intra-venous Immuno Globulin or IVIG or Plasma Pherises or PP. Both treatments reset your immune system so that it stops attacking the myelin sheath which surronds your peripheral nerves. They are also tremendously expensive so you need a doctor who isn’t just a lapdog of the insurance companies.

In any case. You need to get yourself to the ER immediately if you have any difficulty breathing. GBS can be super fast and you may not be able to rescue yourself.

You may want to explore the difference between GBS and CIDP. GBS is acute and episodic. In other words it happens pretty severely and usually, but not always, once in a lifetime. CIDP is sometimes refered to as a chronic form of GBS. CIDP is sometime misdiagnosed as MS because the symptoms are similar. The differential test is an MRI of the brain looking for lessions, and sometimes a nerve biopsy.

I wish you luck and I hope you can find out what is wrong with you.