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March 13, 2007 at 5:08 pm

I wonder what criteria the neurologist used to say that you are “completely recovered”?? You know your body’s symptoms better than anyone else. You may not know “what they mean” but you do know that you have them!!

Keep asking us questions, search the threads with words for your symptoms and keep researching. Many of us have printed out the info to take to our docs. Dr. Gareth Parry & Dr. Joel Steinberg have written an excellent book (Guillain-Barre’ Syndrome) printed by American Academy of Neurology. It was just released and I found my copy at Amazon. It’s very in depth and speaks to how much we still don’t know. They readily admit that much is being learned from the patients themselves. Most doctors only know about this disease by page 373.42 in their text books. I’ve studied my son’s textbook and it is seriously lacking 😮

You may not have a doc or therapist that knows about this disease [I]but[/I] if they are willing to listen and learn with you then you’ll be ahead of most of us. Good luck 🙂

PS ~ GBS ~ getting better [I]slowly![/I]