My son and CIDP

February 26, 2007 at 10:56 am

[FONT=”Comic Sans MS”][COLOR=”Navy”]:) Hi, my son is 7yrs old now and we have been battling CIDP since he was 3 yrs old. I would love to talk to you. I have not found a child that has similar characteristics and it does feel like your alone with this. We have traveled to Rochester, Minnesota to Mayo Clinic several times. We are located in Florida. Health Care here is very sad! Now it is showing up in his foot. His left arm is paralyzed now. It has to be the most difficult thing I have ever endured, to watch my son lose the use of one finger at a time and not be able to do anything about it. Hunter had really bad headaches and still does occasionally. Did he get sick the day after IVIG? Hunter still does sometimes.
If you would like to talk—-my phone #239-543-2146
or email [email][/email]
It would really be nice to find someone to talk to. there are no support groups here and the dr’s just tell me GOOD LUCK, nice huh?
My name is Robin[/COLOR][/FONT][/COLOR]