My experience with CIDP

Monica

Buenos Dias from Tennessee. I am a 78 year old male that has had CIDP for 10 years. I, like you see people running, doing all of the things I used to be able to do, and it makes me invious. I am an avid fisherman, and have been to Mexico 54 times; fishing most of the big lakes there. Not being able to travel; I am content to fish out of a specially outfitted boat that doesn’t require much physical effort. I was diagnosed with CIDP at Mayo Clinic 10 years ago. I had IVIG 5 years ago, and just completed plasma exchange to no avail. Some people on this site have had miraculous improvement from these treatments. Others like me got no improvement whatsoever. You will find that what works for some will do absolutely nothing for others. Try to find a good neuro that will try other options until you can find something that works. Being young, I feel you will respond faster than an older person like me. Keep us informed of your progress. Where are you located?

Jack Houston
Knoxville, Tennessee