Last day of walking & normal movements was April 26th, 2002. I woke up the next day unable to lift my arms, walk at all, & had lost the use of my hands. From then on it amazed me how fast I atrophied. When I was at Mayo in inpatient rehab the middle of May, they asked me if my lower legs had always been so skinny. Actually I was very athletic all of my life, skiing, skating, tennis, etc., but it didn’t matter, atrophy occurs rapidly.
I have now been doing extensive water aerobics twice a week for a year now, but I know that below the knee I will always be atrophied. But that’s OK, I have accepted that. But the water feels wonderful…
I’m glad I posted this because it’s helping me now more then I first realized. My problem is probably just “lack of an exercise program” because I need more then just daily usage of arms and legs to rebuild strength.
This post is also helping in another way. My mother spends more time in bed now then when she gets up because of declining health and I fear that she may lose the strength to even get herself up.
It looks normal. However, might look wierd. Like my hands, my right index finger is halfway bent when I raise my R hand. A have restrictions in fine movements. However, my grips are strong and equal.My neuropathy is part of my life after GBS. I accepted that. So much so , that I accept my scar on my neck from tracheostomy. we all need to adjust and use whatever we can do.