Muscle & joint pain…

September 12, 2007 at 12:40 am

If all you have ever had to dx CIDP was a NCS then I would say yes, I think there could be something more going on. There was another post awhile back by a user named Bubbleboy who also complained of a lot of muscle & joint pain, actually he seemed to be in an excrutiating amount of pain overall. I believe I might have been the only one to suggest that something else might be going on; I mean I have some joint & muscle pain, but it is nothing like the nerve pain in my feet. It turns out he did not have CIDP after all (I don’t think he still has an accurate dx.)

To get my dx of CIDP I was at the Mayo in Rochester for 6 weeks inpatient before they said I had CIDP & not GBS. I had been dx with GBS first in Duluth, MN presenting with numb hands & feet & weakness in my knees. My protein count from a spinal tap was over 300. At Mayo I was given a sural nerve biopsy, a bone marrow biopsy, a lip biospy, a spinal nerve root biopsy, not to mention 4 complete sets of MRIs, CT Scans, X-rays, etc. But if most of your pain seems to be in the muscles & joints, then I think further testing would be warranted. BTW do you have peripheral neuropathy of the hands & feet?