MS mistake too

June 9, 2006 at 10:03 pm


My name is Julie. I’m 39 years old. I too was dignosed with M.S. before they finally changed it to CIDP. My M.R.I. showed no leshions; my nerologist thought it was too early to show. I kept coming in with complaints of weakness, numbness, pain, slurred speech, migraines, vertigo, shakey hands, blurred vision, and the list goes on…One day I woke up and couldn’t walk any longer. I was hospitlaized. My body was beginning to shut down. They told my husband they would have to send me to a convelescent hospital, because they didn’t know what was wrong with me. We finally found a specialist who called the Sacramento Blood bank in to give me plasma pheresis. I had to learn how to walk again among many other painful memories.

I completley understand your exhaustion, as well as your broken heart. Please know you are not alone. There are many of us.

It seems doctors are not very familiar with this disease.

Please take care of yourself and try not to see this condition as permanent. With rest, exercise, treatment (either I.V.I.G., plasma pheresis, auto immune suppressants) you can get a lot stronger. This is a mean illness, but you can beat it. Stay determined. Don’t give up and never think someone upstairs has it in for you. There’s so much we’ll never understand this side of heaven.

Take Care and please feel free to contact me personally if you need to talk.

Your Friend & Fellow CIDP sister;)