motor came third…

April 1, 2009 at 1:11 pm

I had it start with my eye–they determined I had “Horner’s Syndrome”, which I didn’t even know I had–it was found during a doctor’s examination.
But I was having problems with light sensitivity, (photophobia), and later bad migraines because of that.
He then sent me to a neuro to get to the root as to what was causing it, (it had to be a neuro problem).
Later, sensory problems, being unable to feel parts of my limbs on the left side, (I was first diagnosed as CIDP, Lewis-Sumner variant).
Then motor symptoms, (trouble walking, lost strength, falling, etc.). And somewhere in-between, tingling, sunburn-feeling, electric shock type of pain in my spine area, muscle twitching and spasms, etc.
Then it hit my autonomic system.
Still sliding downward, slowly, from there. But most can be treated with the IVIG and Plasmaphereses, and steroids. There are only about 5% with CIDP that those treatment protocols don’t work, (me being in that 5%).