My 78 yr old has had GBS since 2/12/2006. I have been at her side everyday since the beginning. She is in a rehab now and getting movement back alittle everyday. Rehab is so depressing for her because her mind is so with it and the other patients there are old and in bad shape. I visit her everyday and I know she will never be able to live alone again. The plan is for my wonderful husband and I to sell our home and move in her house, my childhood home, to take care of her. I don’t know if she will need 24/7 care but am willing to do that if needed. This has been an awful thing for her. She was sooo independant before the GBS and now she has to rely on everyone else to do for her.
You are a great example to me and I thank all of you for the information I get from this site. We have an appointment with the Neuro next week for the first time since out of ICU and I am wondering if you could give me any information on what I should ask the Dr. I will add the suggestions to my list.
Devoted Daughter Donna