January 23, 2010 at 1:45 am

I am currently suffering from migranes. It is unknown of the cause; GBS, medication or stress. I have also suffered from chest infections and have taken medication to clear it up as a result of a cold. as for fatigue, it comes on quickly. And I can just curl up on the floor and have a sleep. medical appointments take a lot out of me.
Please take care all.


October 23, 2008 at 9:02 am

I have CIDP. When I was first diagnosed, I was getting migraines all the time.
Aw-they were awful. I would get nauseas and couldn’t take any light at all, having to stay in my darkened bedroom. Just going outdoors in the sun sometime would bring them on. I was super light sensitive.
But, my neurologist is part of a team of about 10 neurologists in one office, called “The Neurology Center”. Each neurologist specializes in a different problem. Mine specializes in muscular-neurology and rare diseases. But one of them specializes in migraines, and the office is advanced, in that they often do studies and experiments.
They were experimenting with using anti-arthritic meds, (drugs that help people with arthritis), for migraines. One of the drugs that was working well, was Indocin.
So, well over three years ago, my doctor put me on Indocin 50 mg three times daily. Since then, I have not had one migraine. I swear by that drug. I still take it to this day. The pharmacist always gives me a precautionary flier every time I get my monthly refill of the drug, as Indocin
is an NSAID drug, which the side-effects can bring on a stroke or other bad things.
I don’t care–I am living migraine-free. And I can even take some sun now.
I hope it might work on others here, that get those nasty migraines.


October 22, 2008 at 1:58 pm

Many people think that a really bad headache is a migraine. That is not always the case. Migraines are specific to nerves, circulation and inflammation. They cause visions disturbances, dizziness, nausea, light sensitivity, noise sensitivity and motion sensitivity.
If your doctor has not diagnosed them as “true” migraines, you would need to speak with a Neurologist for that diagnosis.
My son Nate has had severe headaches for this past year, 1 1/2 yrs after being diagnosed with GBS.
We thought they were also migraines since they run in my family. Turns out, they are not migraines. They are a result of nerve damage in Nate’s neck.
He has been working with his neurologist and a pain clinic doctor for the past year or so, first to diagnose the problem, then figure out how to treat it.
They have told us that these headaches are not true migraines and do not react to migraines inhibitors like Imitrex. We have tried them.
The type of headaches that come with GBS are from nerve damage in your neck from GBS.
Nate has a problem with his nerves that come out of the c 3 and c 2 vertebraes. It causes severe pain the left side of his head.
The Pain Center has tried nerve blocks but it has not worked as of yet.
Perhaps your doctors can help you but you need to get the problem diagnosed first if you have not done so.