January 7, 2009 at 2:51 pm

Hey dude,
People have replied to you about pain medications, but nothing further.
You mention that besides pain, you have muscle spasms. Besides pain medications that I am on, I am on two drugs to help stop muscle spasms.
Below, I will list what drugs I am on, and maybe a suggestion to your doctor for anything shown, might help you.
(Note: my CIDP hit my autonomic system, and slowly knocked out the nerves controlling my different organs.)

Atenolol 50mg daily, for tachycardia
Megase 20 ml daily, to increase appetite, P.R.N.
Levothyroxin 50mcg daily, for hypothyroidism.
Detrol 4mg LA daily for stopping bladder spasms, (I am now on a catheter)
Mestinon 60mg 4 times daily, for autonomic dysfunction.
Neurontin 1200mg 3 times daily, for neuralgia.
Flexeril 10mg 3 times daily, for muscle spasms.
Diazepam 2mg 3 times daily for muscle spasms
Indocin 50mg 3 times daily, for migraines.
Zantac 150mg 3 times daily, for GI symptoms.
Erythromyacin 250mg 3 times daily, for gastroparesis.
Marinol 2.5mg one or two tabs up to 3 times daily, for nausea/poor appetite
(I also find the Marinol helps with mild to medium pain.)
Reglan 10mg 4 times daily, (after meals and at bedtime), for gastroparesis.
Vicodin 5/500 1 to 2 tabs every 4 hours, P.R.N. for pain
Restoril 15mg at bedtime, P.R.N. for insomnia
Tigan 300mg p.o. every 4-6 hours, P.R.N. for nausea
Zofran 4mg 4 times daily, P.R.N. for severe nausea
Senacot 1 tablet daily at bedtime as needed
CHEMOTHERAPY: Cyclophosphamide 2000mg I.V. once per month, administered with Mesna, Zofran, and Dexatrose.

If anything would help you here and you have any questions on it, just let me know and I will answer you. When I was having very bad spasms/cramps, they put me on Flexeril. When I was still having them, they added the Valium in conjunction with the Flexeril, and THAT WORKED, and stopped the spasms.
The Marinol is the derivative of Marijuana, and MAKES YOU FEEL GOOD 😀
All the best,


January 7, 2009 at 1:08 pm

As to medicines for our GBS-related pain: I had GBS in 1995. I now take Lyrica 3 times a day for my “nerve-ending” pain (i.e. the sort of pain when water hits my legs, as in a shower or a swimming pool) and Vicodin as needed for “overall” leg pain.

I didn’t start these medications until approx. early 2007. My quality of life has improved [I]dramatically[/I]. I am able to do things that would’ve simply hurt too much to do from 1995 to 2006.

Talk to your neuro. I know some people are very anti-pain medicine but living with constant pain can impact your life in so many ways.