September 29, 2009 at 8:49 pm

Sorry you had to find us but welcome. You will not find a grander group of friends….always here to help, give encouragement or a shoulder when needed. I, like you, the caregiver, only the caregiver for my daughter. Brandy went down hill, then a slight improvement and then the bottom fell out. Most of her story is posted on the success stories. I remember 4 days into GBS and being extrememly selfish. I hadn’t slept in 4 days and could no longer function, I threatened my little girl that if she didn’t allow me to sleep for 3 hours that I would leave her in the hospital by herself. I seriously couldn’t see or function any longer. The nursing staff was wonderful, they promised her that they would wake me in three hours and I promised to wake up in three hours. I needed to close my eyes and rest so that I could help her through GBS. The road was rough at times and when Brandy graduated from high school 4 years later I gave her a card with the words from the song “I Hope you Dance” When Brandy graduated from college 4 years later she gave me a card and on the inside were the words from Celine Dion’s song “Because you loved me”. GBS reared its ugly little head again for Brandy 1 month after she graduated, that was 2 years ago, thankfully not as severe. We will keep you, your husband and your family in our thoughts and prayers.